Showing posts with label NICU bedrest. Show all posts
Showing posts with label NICU bedrest. Show all posts

Monday, February 13, 2012

The Overstreet Twins ~ It was Meant to Be!

August 2007
My husband and I were shocked to find out I was pregnant in August 2007. We had a 3 year old son and an 18 month old daughter and we didn't plan on having any more children. I had some issues with birth control after having my daughter and actually had an appointment to have an IUD placed at the end of August. Imagine our surprise to be pregnant. After the initial shock wore off we were both very excited to have a 3rd coming. It was simply meant to be....

My first appointment @ 9 weeks went well. Having been through this two times before, I went to the appointment alone thinking it was going to be no big deal. When I had the ultrasound to see the baby's heartbeat the tech asked me if this was my first pregnancy. I laughed & replied "No, my third and it was a surprise." Then she laughed and said "Here's another surprise, this is your 3rd & 4th!" I said "HOLY SH**!! I saw the two little heartbeats on the screen and couldn't believe it. I called my husband at work and he thought I was joking. I think we were in shock, again, for about a week. We were then referred to a perinatologist at Maternal Fetal Medicine for a routine first trimester screening the next week. That's the first time we heard the words "monoamniotic" and "high-risk". The only thing we knew about twins was that you could have identical or fraternal. We certainly got a crash course at that appointment. I remember getting home and doing some research on the computer (big mistake at the time). I was terrified by what I read.  I called my Ob/Gyn and he was able to calm me down, telling me that we were in this together and that I had to be strong. I didn't have facebook at that time and I looked for support groups but couldn't find any. I joined a twin website and my first post was "Pregnant with monoamniotic twins and scared", to which I got NO replies. I was even more scared and felt so alone. After two days I finally got a reply from a woman who told me that her hairdresser's cousin had monoamniotic twins and she was kind enough to pass my info on to this momo mom. This was the first person I was able to ask questions, a million of them, via email, and I am so thankful for her. She also told me about monoamniotic.org and I finally felt like I could relate my questions and fears to others who would understand.

We went back to MFM at 12 weeks and we were told that they thought the twins were possibly conjoined, another blow. The next appointment at 14 weeks the doctor suggested we abort the pregnancy because the cords were already tangled and it was going to be "an emotional roller coaster".  I was so upset and refused to see that doctor ever again. At our 16 week appointment we got the confirmation that there was no membrane, but the  good news that the twins were not conjoined, they were just moving in tandem because of the cords. Our MFM doctor was great and very informative during the 16 week appointment. This is when we learned of our treatment course, what to expect and when. The 18 week appointment brought the news that we were having girls, and that one of them had club feet, a small blow that my husband and I took in stride. From 18 weeks until 24 weeks I was seen by MFM every 2 weeks for ultrasounds and Doppler studies. MFM wanted me to begin inpatient monitoring at 24 weeks but my Ob/Gyn pushed to start inpatient at 28 weeks. We had 2 small children at home and the thought of leaving them and my husband was devastating. I also had a full time job and my husband was working full time and doing an accelerated Master's Degree program at night. We agreed on a compromise of outpatient monitoring from 24 to 26 weeks, and checked in to the hospital at 26 weeks for inpatient monitoring with a scheduled c-section at 32 weeks.

The first 2 weeks of my inpatient stay were the hardest of my life up to that point. Being there alone was awful.  My husband could only visit on the weekends because of our kids, his job, and his school. With the help of our family and friends we managed to work out a routine for the kids. Because my husband had class until 11:00pm three nights a week, the kids slept over my sister's on Tuesday and Wednesday, and she took a half day from work every Wednesday so she could bring them in for a visit and dinner with me. Wednesdays were the best. My parents and my mother in law took turns keeping the kids overnight on the weekends so my husband could sleep over with me at the hospital every Saturday night. So I saw my children every Wednesday, and my husband would bring them in early every Saturday to spend the day, then my sister would pick them up from the hospital so my husband could stay over with me. Then my sister would bring them back to the hospital on Sunday mornings to have breakfast with us, and my husband would leave with them around 1:00pm every Sunday. Sunday afternoons were the hardest for me. But that was our schedule and it worked.

During my stay I spent a lot of time at the nurses station, read a ton of books, used my laptop (wish I had Facebook back then), made a great friend with another pregnant mom on the unit, watched TV, napped, had tons of visitors, walked around the whole hospital, got a tour of the NICU, had Reikki, massages, a pedicure, and tried to relax as much as possible. I had a refrigerator in my room which was great for midnight snacks. I had a goal calendar marked for 28 weeks, 30 weeks,  and 32 weeks. It always felt great to scratch one of them off. I also started a CaringBridge website to keep all of our family and friends updated and to help pass the time.

Medically my inpatient stay consisted of one hour monitoring sessions 3 times a day. The monitoring sessions would usually go longer than an hour because it was hard to get both babies on the monitor, and keep them on. It became a routine of having an ultrasound with almost every monitoring session because the girls' hearts would beat in unison and the nurses could never tell if they had both babies on. I also had Doppler studies and growth scans at the MFM office every 2 weeks until 30 weeks, then once a week until I delivered. I called it my field trip for the day and I enjoyed being taken over to the MFM office in a wheelchair. My growth scans showed a slight difference in the size of the babies, so I was encouraged to drink Ensure for almost all of my stay. I was able to walk around almost the whole time I was in the hospital, up until the last 2 weeks. The girls never had any serious decels, but one of them had a scary accel around 29 weeks that lasted about a minute and the doctors were called in to see if they needed to deliver the girls. She recovered and it didn't happen again. On Valentine's Day I woke up at 4:00am with very painful contractions. I was 30 weeks and was sent down to labor and delivery for the day but thankfully they were able to stop the contractions. At this point I was put on complete bed rest because walking around irritated my uterus and started contractions.

My c-section was scheduled for Leap year, Friday, March 29th, 2008. I was 32 weeks 1 day. The day before, one of the neonatologists came to tell me that there was no room in the NICU for my babies, they were full. I was very upset. My Ob/Gyn was upset too. So we had to wait it out one last weekend, the longest weekend of my life, until Monday March 3rd, 2008 which brought me to 32 weeks 4 days.

March 3rd, 2008

Teagan Kathleen was born at 1:45pm, weighing 3lbs 15oz and 16 inches.



Taryn Cynthia was born at 1:47pm, weighing 3lbs 14oz and 16.5 inches.



The NICU was another emotional roller coaster, but in the end it was worth every bit of emotion. We have two miracle babies that have taught us more about life and love then we ever imagined. It changed our lives for the better. I have made life long friends with the nurses who took such great care of  me and the girls. My husband and I learned more about each other during this pregnancy and birth of our girls than we ever knew before, and for that I am so thankful. Small things that others may take for granted are cherished by us. We learned that you can't be afraid to ask questions or challenge a doctor, they don't know everything. If something doesn't feel right, don't be afraid to speak up? Always go with your gut. Most important, we learned how to be advocates for our children.  If you find a great doctor who knows about monoamniotic twins, you will be in great hands.

At this point our girls are almost 4. Sometimes I can't believe it. My husband and I joke all the time about having four kids, especially having twins. And then we say....it was simply meant to be.

Friday, November 25, 2011

Things we wish we knew... Good things to know that may help emotionally, financially, & medically!


Here are some things that some of us discovered from the momo journey… hope this helps you financially, emotionally, and medically!  We are by no means experts, just a group of moms that has went through the momo journey. We are not medical professionals or social workers ~ Always seek your medical expert's and social worker's advice before doing anything!

1. If your babies are in the NICU over 30 days or below a certain weight they may qualify for Medicaid ~check with your Social Worker.
2. You don't have to have a Hep-lock (IV) in the whole time you are inpatient (for the most part). Ask your doctor to write an order stating that.  You may not even have to get blood drawn every 3 days.  Again, check with your doctor.  If you do have to have a Hep-lock (IV) in then consider getting a PICC line instead so you don’t have to have the Hep-lock changed every 3 days.
3. Ask to see if you can have a "day pass" to leave the hospital for a few hours. Or at least ask to get out for a little bit of time each day (to walk or go to eat).

4.  You may qualify for Medicaid while pregnant.  Once you go inpatient your household earning may decrease if you were previously working.  You may qualify for Medicaid and it could cover anything your primary insurance does not. 

5.  If your babies don’t qualify for Medicaid or other state benefits they may qualify for WIC.  Work with your Social Worker on this as well.

6.  You are your own and your babies best advocate.  You need to have a say in when you go inpatient and when you deliver.  Research and contact other momo moms for advice and then fight for what you think is right for you and your family!!! 

7.  Anything your nurses do or make you do that you don't like or don't want to do, talk to your doctor. He can write an order and then the nurses have to follow doctor's orders.  If your nurses don’t seem to be informed about momo protocols help to educate them and if possible show them a cord photo from delivery to show them the severity of the pregnancy and why you are there for monitoring.

8.  AFLAC may be a great insurance (supplemental insurance) to have for the pregnancy and for the babies.  Some people have been extremely satisfied with AFLAC.  You may have to get it early in the pregnancy or AFLAC may not take you on.  It is also possible the only real way AFLAC would cover a momo or any other high risk pregnancy is to have had it before you ever got pregnant. They cover "routine" pregnancies so unfortunately it may be too late to get AFLAC once you find out you have momos. 

9.  Consider hiring a professional photographer to capture those newborn moments in the NICU.  Or have one scheduled right around the due date to get those adorable twin newborn pics. 

10.  In some states if you apply for Social Security benefits while your child is in the NICU, you automatically qualify because they can't check your financial accounts.

11.  If you have to pay for parking at the hospital check with your Social Worker if you can get discounted or free parking.

12.  Check with your Social Worker or nurses to see if your NICU has meal tickets that  you can use  ~ some offer free meals in the cafeteria and some offer a set daily amount.
13.  Visit the NICU while pregnant so you know a bit what to expect.  Also consider getting a book on preemies since you know you will have preemies.  (check out our resources page for a few recommendations; here’s a link to a book to start with:  http://www.amazon.com/Preemie-Parents-Companion-Essential-Premature/dp/1558321349)

14.  Consider receiving counseling from the hospital’s psychologist to prepare for inpatient and NICU journey.

15. Meet the Social Worker for the Fetal Treatment Team/Neonatal Ward prior to going inpatient (can schedule a NICU tour or meeting with hospital psychologist too).  Your Social Worker can become your best friend and advocate while inpatient and while in the NICU. 

16.  Every baby is different!!!  Schedules work for some babies but not for others.  For some, baby book advice may not work and you might not be able to manipulate your baby into a routine or force them to sleep through the night.   For others, the NICU routine works well in the transition to home. 

17.  Read up on what silent reflux is....so common in preemies and often not diagnosed by pediatricians. 

18.  If you are considering breastfeeding do a bit of reading on it before your babies arrive.  Once they arrive you will be so exhausted that it will be good to have gotten an idea on what to expect before you have to pump.  (check out our breastfeeding page for more info).  Ask to see a Lactation Consultant while you are inpatient or another time when visiting the hospital.  A study found that hand expression after each pumping session in the first three days postpartum may help increase milk supply http://newborns.stanford.edu/Breastfeeding/MaxProduction.html Breastfeeding/pumping does not work for everyone though ~ You need to do what is best for you and your family and don’t feel guilty if you aren’t able to breastfeed or pump!

19.  Post partum depression is real and nothing to be embarrassed about.  If you feel you might have it don’t be afraid to seek help and guidance.  A momo pregnancy is very stressful so the possibility of having PPD may be greater than normal. 

20.  You have the right to ask to bring your placenta home although some hospitals do not allow it.

21.  Sign up for every formula brand out there, the sooner the better and start collecting free samples.  Have family or friends sign up too if you want to collect more formula.

22.  When in the NICU, make sure the rules the nurses apply towards you are applied towards themselves. The nurses frequently applied the 'no cell phone' rule on us (for germ reasons) but the next second they would whip out theirs & start texting!

23.  Educate yourself on vaccines while pregnant.  The NICU will probably give the HEP vaccine before discharge; educate yourself if this is something you want immediately or want to wait on for awhile.  Also if your babies are in the NICU for some time they may need to get some of their newborn shots.  Again, educate yourself on what you want to get or wait on if you are considering a delayed vaccination schedule.

24.  Get the scoop on bed sheets being changed. Some hospitals only want to change 3x/wk but you can request/insist on daily since you are in bed most of the day and the sheets get sweat, ultrasound gel, food, etc on them! 

25.  Research research research! Talk to your friends and email us (monoamniotictwinmoms@gmail.com) if you have any questions.  Some things to consider…  vitamins, insurance, counseling, circumcisions, vaccines, breastfeeding, organic/natural foods...

26.  If you live far from the NICU, or even if you don’t (since you can’t drive immediately after a c-section), see if your Social Worker can set you up in nearby lodging such as the Ronald McDonald House.  Some hospitals even have “mother’s rooms” available for moms that will be at the hospitals while their children are being treated for several weeks.  

27.  You should consider every qualified hospital in your area and interview doctors and get tours to see where you should go.  Call and speak to the head nurse and ask what doctor she would recommend.  Don't just accept the first practice you were referred to is the best or delivers at the best facility for your 100 day stay.  Also, it is usually recommended that women expecting preemies 32 weeks or earlier should be close to if not at a facility with a NICU that can handle the babies. That more than anything should determine where you deliver.

What to pack while inpatient

Many momo moms choose to go inpatient between 24 and 28 weeks with goal delivery dates of 32 to 34 weeks.  That can mean up to 10 weeks in the hospital!!!

What should you pack to make your time in the hospital as comfortable as possible?? Here's a list to start...  Make yourself as comfortable as possible and enjoy your stay ;)   You shouldn't have to be on pregnancy bedrest while in the hospital so request time out of your room daily (at least 15 minutes to walk and another 15 minutes to shower) and even possibly off campus (once a week).  See if you can not have an IV in the whole time (it gets very uncomfortable) and ask your doctor if you can get less frequent blood draws (many have a policy of taking blood every 3 days).  Good luck, you CAN do it!

This list is compiled based on the suggestions of multiple moms!  If you packed all of this it would take you a day to move in! But you may be there for 10 weeks so pack as much as you think you'll want/need/use!  

1.  Comfy clothes and shoes (large shirts/tanks/yoga-stretch pants/sleeping pants/shorts/socks/sweatshirt) ~ you may get bigger than you expect so bring some BIG shirts, hospital rooms can be cold so pack some cooler weather things like sweatshirts and warm socks! Some moms also liked to dress up a bit so maybe an outfit or two (jeans/nice shirt).
2.  Camera (document your growing belly!)
3.  Laptop/tablet  (most hospital rooms should have wi-fi)
4.  DVDs (or download a few shows to your laptop/tablet)
5.  Healthy snacks (and maybe a few not so healthy ones for a quick pick me up!)
6.  Pillow and pillowcases
7.  Sheets (may want to bring your own/soft sheets)
8.  Blanket/comforter (one to make bed more comfortable (twin size) and a small one to cover up during monitoring sessions (throw size))
9.  MP3 Player/small speakers or docking station
10.  Books/crossword puzzles
11.  Night clothes
12.  Craft activities (the hospital is a great place to learn how to knit or crochet and you can make a few cute hats for when you babies are in the NICU or for your newborn photo shoot)
13.  Scrapbook materials (work ahead on the baby books since things will be busy once your babies arrive!)
14.  Toiletries (toothbrush, toothpaste, brush, face cleanser, lotions, shampoo, soap (bar and gel), conditioner, floss, lip balm, razors, loofah, hair items (bobby pins, straightener, curler, hair ties), q-tips, make up, shower cap, tweezers, nail clippers, nail file, nail polish/remover, vitamins (although many times the hospital won't let you take your own, you will have to take ones they provide))
15.  Water bottle (keep filled to remind you to drink water!)
16.  Notebook/pen/cards (extra cards to write to notes on antepartum wing as thank yous)
17.  Photos & Photo Frames (family, favorite ultrasound pics to keep your eye on the prize(s)!)
18.  Cell phone
19.  Alarm clock/watch
20.  Ear plugs
21.  Eye mask
22.  Laundry bag
23.  Shower shoes
24.  Slippers 
25.  Zip lock bags
26.  Scotch tape/fabric tape (to tape things to your walls)
27.  Sheet protectors (to put pictures and art projects from your kids in)
28.  Glade plug in (or other scented item)
29.  Memory foam pad for twin size bed
30.  Body/pregnancy pillow
31.  Towels (soft ones!, fun patterns or bright colors to brighten up your bathroom)
32.  Journal/pens/stickers
33.  Small plant 
34.  Chain/Necklace to keep rings on (fingers may get swollen during inpatient stay)
35.  Salt and pepper shakers (to season food as desired); other spices you love
36.  Baby wipes (help wipe off monitor/ultrasound gel)
37.  Mini fridge (if allowed) to store healthy snacks (many floors also have a fridge available to inpatient moms that is stocked with milk)
38.  Fan (white noise/room may get hot) 
39.  Chargers for all electronics (cell phone, M3 player, laptop, tablet, camera)
40.  Headlamp (to read in bed without bright lights on)
41.  Febreeze/Diffuser
42.  "Nurse Trap" (snacks/cookies/candy to entice nurses to stop by more often and get to know your nurses!) 
43.  Toilet paper (nice and soft if you don't like the hard stuff in most hospitals) 
44.  Calendar (to countdown the days!)
45.  Exercise ball/band